Type 1

Neuroblastoma is a rare type of childhood cancer that develops from immature nerve cells. It most commonly affects babies and children under five years old.

The term Type 1 neuroblastoma is sometimes used when discussing older classification systems for neuroblastoma. These classifications can vary, so doctors use specific medical and genetic tests to understand each child's cancer and decide on the best treatment.

Neuroblastoma often begins in the adrenal glands, which sit just above the kidneys, but it can also develop in other parts of the body.

What happens in the body?

Neuroblastoma develops when immature nerve cells grow abnormally and form a tumour. Some tumour's grow slowly, while others can grow quickly or spread to other parts of the body.

Every child's diagnosis is different, and doctors carefully assess the tumour to understand how it may behave.

What symptoms can occur?

Symptoms depend on where the tumour develops. They may include:

• A lump or swelling in the tummy, chest or neck.

• Tummy pain or discomfort.

• Unusual tiredness.

• Loss of appetite or weight loss.

• Bone pain.

• Unexplained bruising, sometimes around the eyes.

These symptoms can have many causes and do not automatically mean a child has cancer. Persistent or unexplained symptoms should be checked by a healthcare professional.

How is neuroblastoma diagnosed?

Doctors may use several tests to investigate suspected neuroblastoma, including:

• Scans: Ultrasound, MRI, CT or specialised scans to locate the tumour.

• Blood and urine tests: To look for substances associated with neuroblastoma.

• Biopsy: A sample of the tumour examined under a microscope.

• Genetic testing: To identify changes that may help doctors understand the tumour and guide treatment.

Not every child will need every test.

How is it treated?

Treatment depends on the child's age, the tumour's location, its biological features and whether it has spread.

Some children may need careful monitoring, while others may require surgery, chemotherapy, immunotherapy or other specialist treatments.

The medical team will create an individual treatment plan based on the child's needs.

Raising awareness 💗

At The Millie Rose Foundation, we believe every child deserves the best possible care and every family deserves understanding and support.

By raising awareness of childhood cancers such as neuroblastoma, we hope to help families learn more, encourage continued research and shine a light on the challenges children and their loved ones face.

In memory of Millie Rose Hedley, we remain committed to raising awareness of all childhood cancers and helping families feel less alone.

💗 Every child matters. Every family matters. Every story matters.

Please note: “Type 1 neuroblastoma” is not a universally used modern classification. If you have seen this term in a medical report or a particular source, the exact meaning may depend on the classification being used. This blog is for general awareness and is not a substitute for medical advice.